What does a cochlear implant sound like at first?
“What does it sound like at first?” This is one of the most common questions I get asked when discussing my cochlear implant journey. For me, it sounded like screechy tinnitus anytime anyone spoke. I’ve heard many say it’s robotic or like Mickey Mouse. This is because a cochlear implant electrode is placed And it took a while before things started to sound natural.
But what I want to know from other CI users is this: When did it hit you/what sound made you realize that you could actually HEAR?
May Pay It Forward
ALDA (Association of Late-Deafened Adults) is a non-profit organization, established in 1989, whose mission is to support the empowerment of deafened people. I was able to attend ALDACon this past fall in San Diego and had a great time! ALDA provides support, advocacy, and outreach for Late-Deafened, Deaf, and Hard of Hearing, as well as their families. Our community is here to share unique experiences, challenges, and coping strategies. We are all in this together.
April Pay It Forward
Deaf Community Services advocates for the rights of full and equal access to ASL, Deaf Culture, English, education, employment. DCS also serves the diverse community of Deaf, Hard of Hearing, DeafBlind and Late Deafened individuals supporting their missions to live independently and productively.
March Pay It Forward
That Deaf RDH is a scholarship awarded to any deaf or hard-of-hearing person(s) attending an accredited dental hygiene school to help cover additional costs such as uniforms, scrubs, loupes, instruments, exam fees, etc.
The Hearing Journal Entrepreneurship Spotlight
Hi there! My name is Michelle Hu, and I’ve been a pediatric audiologist for over 12 years working specifically with the diagnosis, hearing amplification, cochlear implant evaluation, programming, and aural rehabilitation. Growing up, I always knew I wanted to pursue a profession where I could truly help improve others’ quality of life. I constantly went back and forth between medicine, law, and social work. Something unique about me is that I grew up hard of hearing. I was identified with bilateral mild/moderate sensorineural when I was about 3 years old, fit with hearing aids soon after, and today utilize bilateral cochlear implants. Because I have Pendred syndrome and enlarged vestibular aqueducts (EVA), my hearing got progressively worse over time. During my senior year of college, I had another sudden drop in hearing. I was sitting in the waiting room with my mom when she turned to me and said, “You’d make a good audiologist since you’d know how your patients were feeling.”
Spectrum News Story Contribution, “Scientist advancing discoveries to restore hearing loss”
Bree Steffen with Spectrum News recently interviewed Dr. Michelle Hu in San Diego as part of her story, “Scientist advancing discoveries to restore hearing loss”, published December 12, 2022.
The Emotional Side of Progressive Hearing Loss for Parents
No parent ever wants to hear their child cry out in distress. These are words that my mom and dad had to hear more than a few times as I grew up. The very first time, my mom says she sprung out of bed in a panic — she didn’t know what to do. She wasn’t a physician nor was she an audiologist, so she was left to wonder - Was it just a cold? Was it an ear infection? Something worse?
What do you do when others talk about your devices in public?
As a kid, I'm sure this happened often without my knowing. Sometimes I did know and shrunk back, pretending to be oblivious. Other times I remember tucking my hair back behind my ears to show my hearing aids off, as if I 𝘸𝘢𝘯𝘵𝘦𝘥 them to ask me directly. Most days I was a very social child and I'd simply say "Hearing aids, they help me hear better!" Anything said with confidence and carefree attitude was usually received pretty well.
Do we need to be quiet now that my child has cochlear implants?
Many parents and family members wonder if sounds will be too loud for their child when they get a cochlear implant. I wondered the same thing before my own initial activation.
My Hearing Loss Journey
If you had told my mom 35 years ago that I would grow up to become both a pediatric audiologist and a classically trained chef she never would have believed you. At that time, I was diagnosed with mild hearing loss secondary to Enlarged Vestibular Aqueduct Syndrome/Pendred Syndrome and fit with bilateral hearing loss shortly after. My mom was told that I would probably not go beyond a third grade reading level.
Circa 1987… hearing aids have come a long way!
Circa 1987 to 2020. Who else's parents kept your first pair of hearing aids and earmolds?
I think I missed the big clunky body worn hearing aids by only a few years because my hearing loss was mild when first diagnosed